Wednesday, May 25, 2011

SC appointments

Today was Seattle Children's appointments day.  6 and 1/2 months post transplant.

First off, the day starts way too early.  Me, Karina, and Gab get to SC by 7:30 for labs.  Blood draws are never fun, but Gabrielle does really well considering.  Thankfully, we get our favorite phlebotomist (sp?) and he gets all he needs the first poke. After labs, we head to the heart center to wait for echo.

Today was a relatively short wait and we go into echo where Karina demands to watch Dora.  Gabrielle always starts the echo being very cute and today was dancing to Dora.  But in true Gabrielle fashion, when she thought she was done, she was done.  Gab started pulling the wand off of her chest and after a bit of wrestling, we got all the pictures and went to wait some more.

Waiting, waiting, waiting.  Gabrielle had a few friends stop in to say hello and comment on how cute she is.  Then finally, a transplant nurse followed by Dr. Law.  Gabrielle was not going to let anyone listen to her heart without a fight and was pulling the stethoscope off of her chest for both Jason and Dr. Law.  But she remained happy and playful.  Waving, blowing kisses, smiling etc. 

Final outcome:  Everything looks great.  Her echo showed that her heart is growing nicely and proportionately.  No signs of rejection from the echo or labs.  All labs looked good and depending on her cyclosporine levels, we can go to twice a day dosing for her medicine.  That means I can be done waking up at midnight to give medicine.  I am very excited that this is a possibility.  Dr. Law, in his normal fashion stated that Gab is only 6 months post transplant and he would normally not suggest changing the dosing schedule but for Gab, there is no reason not to.  She meets all of the other qualifications and at some point he has to "take the jump". 



Everyone at SC is amazed by our little Gab.  I realized while attempting to add a tab about Gabs hearts, how crazy this journey has been.  Hopefully I can get that up with a few pictures in the next few days. 

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